Bresdex


BresDex

Cardiff University has been funded by Cancer Research UK and is working in collaboration with the University of Sheffield, the University of Oxford, and the NHS Cancer Screening Programmes to develop and evaluate a decision support intervention for women diagnosed with breast cancer.

Aim

To develop, validate, field test and evaluate the impact of interactive patient decision intervention focusing on surgical treatment choices for women newly diagnosed with early stage breast cancer.

Background
Women diagnosed with early breast cancer can be given a choice of treatment options, the most common include either mastectomy or breast conservation surgery followed by radiotherapy. There is no difference in long-term survival between the two options. Women faced with these choices need high quality, accurate and understandable information about what each treatment involves and how they differ from each other. Women also need to be able to reflect on their personal views and values to make a choice that is best for them.

About the study

The research is a seven-step process: 1) systematic literature review, 2) & 3) qualitative studies to assess information needs of patients and professional, 4) prototype development and field-testing, 5) evaluation using in-depth interviews and online questionnaires, 6) dissemination and 7) maintenance of product and website.

To find out more about the study, email: bresdex@cardiff.ac.uk


Publications
Increasing readiness to decide and strengthening behavioral intentions: Evaluating the impact of a web-based patient decision aid for breast cancer treatment options (BresDex: www.bresdex.com).
Sivell S, Edwards A, Manstead AS, Reed MW, Caldon L, Collins K, Clements A, Elwyn G, on behalf of the BresDex group None, Patient Educ Couns (April 2012)

Theory-based design and field-testing of an intervention to support women choosing surgery for breast cancer: BresDex. Sivell S, Marsh W, Edwards A, Manstead AS, Clements A, Elwyn G, BresDex group None, Patient Educ Couns, Volume 86, 2 (February 2012) pp.179-188 


Clinicians' concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making. Caldon LJ, Collins KA, Reed MW, Sivell S, Austoker J, Clements AM, Patnick J, Elwyn G, BresDex Group None, Health Expect, Volume 14, 2 (June 2011) pp.133-146

Theory-based design and field-testing of an intervention to support women choosing surgery for breast cancer: BresDex. Sivell S, Marsh W, Edwards A, Manstead AS, Clements A, Elwyn G, On Behalf of the BresDex group None, Patient Educ Couns (May 2011)

Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions? Sivell S, Edwards A, Elwyn G, Manstead AS, Health Expect, Volume 14 Suppl 1 (March 2011) pp.6-19


Exploring the requirements for a decision aid on familial breast cancer in the UK context: a qualitative study with patients referred to a cancer genetics service. Journal of Evaluation in Clinical Practice, 14: 110-115, 2008.
Iredale R, Rapport F, Sivell S, Jones W, Edwards A, Gray J, Elwyn G.

New technologies to support the decisions of women facing surgical choices for breast cancer: The reactions and concerns of health professionals. Caldon L, Walsh K, Collins K, Sivell S, Evans R, Edwards A, Elwyn G, Reed M, Psycho-Oncol , Volume 18 , 3 (March 2009) pp.320-320

Interactive patient decision aids for women facing genetic testing for familial breast cancer: a systematic web and literature review. Journal of Evaluation in Clinical Practice, 14: 70-74, 2008.
Williams L, Jones W, Elwyn G, Edwards A.

Decision aids for familial breast cancer: exploring women's views using focus groups. Health Expectations, 9: 232-244, 2006.
Rapport F, Iredale R, Jones W, Sivell S, Edwards A, Gray J, Elwyn G.

Visit the site at: www.bresdex.com